Our Board represents parents and professionals from child psychology to corporate marketing, but all have a common purpose to help families of children with pediatric pain.
Sue Pinkham / Secretary
Sue Pinkham has a daughter who was diagnosed with CRPS/RSD in 2005 and EDS in 2012. She has been involved in raising funds and awareness of CRPS/RSD since 2008. She has organized and participated in fundraisers for non-profits for the last 20 years including Wide Horizons for Children, The Thornton Burgess Society, RSDSA and Duxbury Public Schools, among others. Sue is the President of the Board of Directors and her duties include presiding over the Board meetings, fundraising, and working to fulfill the mission of TCAPP.
Dr. Aurora Richards-Stipnieks / Treasurer
Dr. Aurora Richards-Stipnieks is a veterinarian who has a daughter that was diagnosed with RSD/CRPS in January 2007, Ehlers Danlos Syndrome in October 2008, and Dysautonomia (POTS and Gastroparesis) in 2010. She has volunteered for non-profit groups helping with fundraising events, creating support groups, and has served before as a treasurer for another non-profit organization. She is the treasurer of the Board of Directors of TCAPP and her duties include bookkeeping, and working to fulfill the mission of TCAPP.
Pediatric Neurologist Jean E. Teasley, MD serves patients through Children’s Hospital’s Muscular Dystrophy, Neurology and Spasticity programs. Board certified in Neurology, Pediatrics and Electrodiagnostic Medicine, Dr. Teasley has cared for children and adolescents for more than 20 years. Her areas of clinical specialty include neuromuscular diseases and operative monitoring for neurosurgical procedures. Dr. Teasley received her medical degree from the Medical College of Georgia. She completed both a residency and internship in Pediatrics at the Children’s Hospital Medical Center of Northern California. She completed a residency in Child Neurology and a Neuromuscular fellowship at Virginia Commonwealth University (VCU) Medical Center. While serving on faculty at Louisiana State University and University of Alabama in recent years, Dr. Teasley continued pursuing these areas of interest through work in the neurophysiology laboratory and with Muscular Dystrophy Association clinics and Spasticity clinics. In addition to her role at Children’s Hospital, Dr. Teasley serves as Associate Professor in the Department of Neurology’s Division of Pediatric Neurology at the VCU School of Medicine.
Donna Sullivan is a graduate of Providence College and has worked for over 20 years in media, communications and marketing with some of the world’s biggest brands. A passionate writer, Donna uses her skills to help TCAPP creatively raise awareness of the needs of kids living with complex pain. Donna and her husband Bob have three children diagnosed with Ehlers Danlos Syndrome, POTS and Complex Regional Pain Syndrome. Through her patient advocacy, work with families and blogging ( TCAPP Parent Talk and Stronger Than It) she hopes to give voice to the real struggles that complex pain families face trying to get experienced care and effective treatment.
Jennifer Shaheen has loved technology and storytelling since she was a little girl. She started her first business while in school at Hofstra University. Twenty years later, that business is The Technology Therapy Group, a full-service marketing agency which has supported numerous small business and non-profits including Tarpon Arts, the American Baptist Church, National Organization for Women NY Chapter and SCORE. Jennifer looks forward to using her expertise in efficiently increasing awareness and encouraging a community of supporters for the benefit of children with pediatric pain.