TCAPP Board

Our Board includes parents, advocates, and professionals who are all dedicated to helping families of children with pediatric pain.


Sue Pinkham / President/Secretary

sueSue Pinkham is a Mom whose daughter was diagnosed with CRPS/RSD in 2005 and Ehlers Danlos Syndrome in 2012. She has been involved in raising awareness of CRPS/RSD and chronic pain since 2008. Sue has organized and participated in many fundraisers for non-profits for the last 20 years including Wide Horizons for Children, The Thornton Burgess Society, RSDSA and TCAPP. Sue is one of the founding Moms and the President of The Coalition Against Pediatric Pain. Her duties include presiding over the Board meetings, supporting children and families who live with pediatric pain conditions, fundraising, and working to fulfill the mission of TCAPP.

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Mike Pinkham / Treasurer

mikeMike Pinkham is a Certified Public Accountant who received his Master of Science in Accounting from Suffolk University in 2016. He has experience in tax and assurance, and works with numerous non-profits in addition to for-profit enterprises and individuals. Having seen his cousin battle chronic pain for over a decade, Mike is committed to fulfilling the mission of TCAPP in any way he can. Mike serves as Treasurer for TCAPP, where he is responsible for bookkeeping and compliance.

Donna Sullivan

Board Liaison - Donna SullivanDonna Sullivan is a graduate of Providence College and has worked for over 20 years in media, communications and marketing with some of the world’s biggest brands. A passionate writer, Donna uses her skills to help TCAPP creatively raise awareness of the needs of kids living with complex pain. Donna and her husband Bob have three children diagnosed with Ehlers Danlos Syndrome, POTS and Complex Regional Pain Syndrome. Through her patient advocacy, work with families and blogging ( TCAPP Parent Talk and Stronger Than It) she hopes to give voice to the real struggles that complex pain families face trying to get experienced care and effective treatment.

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Jodi Pinkham

Jodi has been part of TCAPP since day one as a teenager living in chronic pain. Jodi sends cards/smiles to TCAPP Kids, fundraises and plans/organizes TCAPP’s Pediatric Pain Week at the Center for Courageous Kids. Jodi’s been living with chronic pain since the age of 14 and was eventually diagnosed with Ehlers Danlos Syndrome after searching for answers for many years. She is passionate about helping children who live with chronic pain and helping them make connections with others who understand what they are going through.

 

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Lexi Uslu

Lexi is a 24 year old who lives with many chronic illnesses. She was diagnosed as a child and now her mission in life is to help other children to find happiness despite being chronically ill. Lexi lives to help and support families and kids going through the struggle of living in chronic pain and having chronic illness. Lexi is a writer and enjoys spending time with her cat and husband (as well as helping TCAPP).