Our Board includes parents, advocates, and professionals who are all dedicated to helping families of children with pediatric pain.
Sue Pinkham / President/Secretary
Sue Pinkham is a Mom whose daughter was diagnosed with CRPS/RSD in 2005 and Ehlers Danlos Syndrome in 2012. She has been involved in raising awareness of CRPS/RSD and chronic pain since 2008. Sue has organized and participated in many fundraisers for non-profits for the last 20 years including Wide Horizons for Children, The Thornton Burgess Society, RSDSA and TCAPP. Sue is one of the founding Moms and the President of The Coalition Against Pediatric Pain. Her duties include presiding over the Board meetings, supporting children and families who live with pediatric pain conditions, fundraising, and working to fulfill the mission of TCAPP.
Mike Pinkham / Treasurer
Mike Pinkham is a Certified Public Accountant who received his Master of Science in Accounting from Suffolk University in 2016. He has experience in tax and assurance, and works with numerous non-profits in addition to for-profit enterprises and individuals. Having seen his cousin battle chronic pain for over a decade, Mike is committed to fulfilling the mission of TCAPP in any way he can. Mike serves as Treasurer for TCAPP, where he is responsible for bookkeeping and compliance.
Donna Sullivan is a graduate of Providence College and has worked for over 20 years in media, communications and marketing with some of the world’s biggest brands. A passionate writer, Donna uses her skills to help TCAPP creatively raise awareness of the needs of kids living with complex pain. Donna and her husband Bob have three children diagnosed with Ehlers Danlos Syndrome, POTS and Complex Regional Pain Syndrome. Through her patient advocacy, work with families and blogging ( TCAPP Parent Talk and Stronger Than It) she hopes to give voice to the real struggles that complex pain families face trying to get experienced care and effective treatment.
Julia joined TCAPP in its early days when she herself was an affected teenager, participating in fundraising and helping to support the other members who were newer and younger than she. She made a stained glass copy of our logo to use at conferences. As she grew older and reached adulthood, she helped advocate for other members and reached out to newly affected individuals with her support. During medical school she has continued to stay active, writing cards and reaching out to patients. Ultimately, she joined the board to play a more active role in the future of TCAPP.
Cheryl Myers has a daughter who was diagnosed with CRPS in 2011 and with Hypermobile Ehlers-Danlos Syndrome in 2014. Cheryl received her Masters in Science in Social Work from Columbia University. She has worked for the Village for Children and Families and the Manchester School System in Connecticut. Cheryl has helped support young zebras [people with rarely diagnosed chronic “invisible” illnesses] and families and enjoys sending cards and packages to children and young adults through our Send A Smile program.
Jodi has been part of TCAPP since day one as a teenager living in chronic pain. Jodi sends cards/smiles to TCAPP Kids, fundraises and plans/organizes TCAPP’s Pediatric Pain Week at the Center for Courageous Kids. Jodi’s been living with chronic pain since the age of 14 and was eventually diagnosed with Ehlers Danlos Syndrome after searching for answers for many years. She is passionate about helping children who live with chronic pain and helping them make connections with others who understand what they are going through.
Sarah Bohrer is a board certified pediatrician who attended Allegheny College as an undergraduate, then revived her MD from SUNY at Buffalo School of Medicine. She trained at Northshore University Hospital in Manhasset, NY. Sarah recently worked alongside Dr Anne Maitland and had the pleasure of caring for many medically complex children and families. Although she is currently not seeing patients, Sarah is a mom to three children with Ehlers-Danlos Syndrome, and has a keen interest in helping other families navigate the difficult journey of caring for kids with complex and painful health conditions. She would love to one day be involved with an Ehlers-Danlos Clinic, where families can get the excellent, comprehensive care they deserve.