TCAPP’s dedicated team makes all of our programs possible, and brings tremendous knowledge and support to our organization.
Medical Patient Advocate
Susan Shmoys, M.D.
Susan Shmoys is a former specialist in Maternal Fetal Medicine who has a 17 year old daughter who is currently in remission from her second prolonged episode of CRPS. Although never officially diagnosed with dysautonomia, her daughter has also had frequent episodes of “vasovagal” syncope. Susan herself suffers from chronic pain as well as several other medical issues.
Patient Comfort Advocate
Cheryl Myers – Sue Pinkham
Cheryl and Sue are Moms of children living with chronic pain disorders. They personally know the stress this can cause on the child and the family alike. They like to help by bringing a smile to those in these situations with our “Send a Smile” program. Cheryl and Sue are fabulous at making sure that kids that are hospitalized, having a difficult time, going through medical procedures, etc. get a gift to know they are not alone in their struggle. Please email us at firstname.lastname@example.org to order a smile for your child. Please send TCAPP your child’s name, their diagnosis, their age, favorite color and a few of their favorite things – stuffed animals, crafts, legos, etc.
TCAPP Education Advocate
TCAPP is lucky to have some educational advocates with a wide variety of experience in the educational field. If you are looking to touch base with someone to help guide you in the process of an IEP, 504, or in arranging rights for your college bound child, email us and see if we can help.
Advocate/Consultant Ph.d. Anita Stipnieks, Retired Assistant Superintendent
TCAPP Legislative Advocate
Karen Richards is 20 years old. She is affected by a Connective Tissue Disease of unknown determination that affects her blood vessels in her brain, her joints and her spinal structure. She also has Mast Cell Activation Disorder, RSD/CRPS, Common Variable Immune Deficiency (CVID), Mitochondrial Dysfunction, and Benign Intracranial Hypertension. Karen Richards enjoys writing, is a published author and has the website: www.sweetlemonpies.com
TCAPP Legal Consultant