TCAPP’s dedicated team makes all of our programs possible, and brings tremendous knowledge and support to our organization.
Patient Comfort Advocates
Cheryl Myers and Sue Pinkham
Cheryl and Sue are Moms of children living with chronic pain disorders. They personally know the stress this can cause on the child and the family alike. They like to help by bringing a smile to those in these situations with our “Send a Smile” program. Cheryl and Sue are fabulous at making sure that kids that are hospitalized, having a difficult time, going through medical procedures, etc. get a gift to know they are not alone in their struggle. Please email us at firstname.lastname@example.org to order a smile for your child. Please send TCAPP your child’s name, their diagnosis, their age, favorite color and a few of their favorite things – stuffed animals, crafts, legos, etc.
TCAPP Legislative Advocate
Karen Richards is 22 years old. She is affected by a Connective Tissue Disease of unknown determination that affects her blood vessels in her brain, her joints and her spinal structure. She also has Mast Cell Activation Disorder, RSD/CRPS, Common Variable Immune Deficiency (CVID), Mitochondrial Dysfunction, and Benign Intracranial Hypertension. Karen Richards enjoys writing, is a published author and blogger.
TCAPP Legal Consultant