About the Moore Heart Award
Everyone knows living with chronic illness, particularly one involving pain, can wear on you, your family, and just beat you down. It’s an ugly reality that many out there are faced with. Those affected end up having two choices in life: Give Up; or Live In Spite of Your Illness and Chronic Pain to the Best of Your Ability.
Then, we have those special warriors out there who make a third choice for themselves. These warriors not only live life in spite of their illness and chronic pain, but somehow, they find the strength to always be there for others and to reach out a helping hand when others are in need. They offer advice, they give doctor recommendations, they laugh with you, they cry with you, and they pray for you despite the fact that they too are struggling on a daily basis.
In 2014 The Coalition Against Pediatric Pain decided to annually recognize a remarkable individual who encourages and inspires our kids while facing their own medical struggles. TCAPP unanimously voted to name the award after our first recipient, Amelia (Milly) Moore, as it is Amelia who inspired TCAPP to create this award.
This Year’s Recipient
The first annual TCAPP “Moore Heart” award is being presented to Miss Amelia “Milly” Moore
Amelia Moore has turned her personal challenges into an ability to help others overcome their fears and misunderstandings about mitochondrial disorder Her knowledge and gentle demeanor have a profound effect on the individuals around her. Her passion and openness about her challenges is not only admirable but inspirational. She has accepted her illness as part of her life but does not allow it to define who she is. She has turned her struggles into the ability to help others overcome their fears and feelings of isolation. She emulates patience, optimism and hope. Amelia is a perfect example of when circumstances fail, but character succeeds, one becomes a model of hope for others. Amelia has taught us not to wait for the storm to pass but to dance in the rain. Amelia is an inspiration to all of us and the perfect dance partner!
Photos and Videos
Articles and Blog About Amelia
SCIENTIFIC AMERICAN: RARE DISEASES IN HONOR OF SAM BURNS
Amelia is featured in this Scientific American blog post as the patient “Rose.”
“When circumstances fail but your character succeeds, you become a model of hope for others”
“Whether they know you as Milly POTS or Amelia Moore, you have been an outstanding asset to the online patient community. Your courage and commitment to helping others continues to inspire all us everyday.”
Board of Directors from Dysautonomia International
“You have touched my life so far beyond what I can even find words to express. At quite possibly the scariest time of my life, about 3 years ago, you stepped in and became like a mentor to me and your example of love blew me away and does to this day. I’ll never, ever forget it. I look up to you so much and your courage helps me and so many others find courage as well.”
“You may have spent years or only minutes with the person, but leave an imprint on each person’s heart. You truly are an inspiration and encouragement to all. You make a difference in the lives of others each and every day!”
“For a project at school I had to write about a person who influenced my life, so I chose you! I could write a book titled “The Amazing Traits of Amelia Moore.” I hold a piece of you in my heart and will forever.”
“I respect you so much for choosing to wear a smile, when so many would be frowning. I respect you so much for reaching out to others, when most people would be focused solely on themselves. You are the good in the world, that we don’t often get the opportunity to see.”
“Don’t shine so that others can see you. Shine so that through you, others can see Him.”