Resources to help with understanding the world of pediatric pain.
The American Pain Society is a multidisciplinary community that brings together a diverse group of scientists, clinicians and other professionals to increase the knowledge of pain and transform public policy and clinical practice to reduce pain-related suffering.” (APS, “Home”, 2008).
Offers state-by-state extensive databases, parent support, parent mentoring, resources and training seminars for parents with children of all disabilities
Rare disease network including blogs, advocacy, rare disease news, research projects and rare disease education.
Extensive National rare disease database, resource guides and rare disease in the news.
Support & information for undiagnosed, unknown and mystery diagnoses
The SIG “promote education about pain in children, share relevant information about children’s pain control, advance our ability to alleviate children’s pain from an international and interdisciplinary perspective, and to encourage research, particularly multicenter studies, and studies which focus on unique problems of pediatrics, including newborns.” (SIG, “Home”, 2008).
The SIG web site also offers links to numerous web sites with information about pediatric pain for health professionals, children, and families. Click HERE for more information.
The International Association for the Study of Pain (IASP) is the leading professional forum for science, practice, and education in the field of pain. Membership of IASP is open to all professionals involved in pain research or the diagnosis and treatment of pain. IASP has more than 6,900 members in 106 countries, 69 national Chapters, and 14 Special Interest Groups (SIGs). IASP, founded in 1973, is governed by an international Council, made up of Officers and Councilors elected by the members of the association. Members may also serve on Committees and Task Forces. The current president of IASP is Troels S. Jensen. (IASP, “About IASP”, 2008).
The Canadian Pain Society has many aims, including: fostering and encouraging research, promoting education, advise national, regional, and local agencies and institutions on standards relating to the use of drugs, appliances, and other procedures in the therapy of pain, among other things. (CPS, “About Us”, 2008).
Pain in Children Resources The About Kids Health web site hosted by Sick Kids in Toronto, Canada provides parent and child friendly material on a number of children’s health issues, including pain. Their Pain Resource Centre has information about how to tell if your child has pain, how pain works, and how pain medicines work.
ChildKind International is an initiative to improve the quality of pain control for children in healthcare facilities worldwide through the awarding of a special designation and accreditation to institutions that have implemented specific policies which are known to promote pain reduction. Such an award has the potential to stimulate hospitals to address and formalize their approaches to pain management, thus fostering the goal of pain relief for all children regardless of their site of care or provider.
The IWK Health Centre and several of our faculty are part of the CIHR Team in Children’s Pain led by Dr. Bonnie Stevens at Sick Kids in Toronto. The CIHR Team in Children’s Pain is a multidisciplinary research team from nursing, medicine, psychology, and pharmacy with clinical and research expertise in pediatric pain, research utilization, evidence-based practice, quality assurance, and multiple research methods. The team will conduct a novel, integrative, theoretically-based program. The objectives of this team grant program of research are to: develop a database describing current pain practices in children, evaluate the influence of organizational context on pain, and assess the efficacy of an interactive knowledge translation strategy for improving pediatric pain practices.
AWCH is a national organisation advocating for the needs of children, young people and families within the health care system in Australia. Focusing upon the psycho-social needs of children and young people, AWCH is involved in education, advocacy, research and consultation, support to families and health professionals, information provision, and is available to give talks about the special needs of children in hospital and/or AWCH Services.
The Caregiver Action Network serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease.