Physician Registry

Choosing a doctor is a bit like trying on shoes, a perfect fit may be different for each individual. The following list has been compiled by pain patients who have had positive experiences with these physicians.

If you have a physician that you would like to share information about, please email us at info@tcapp.org. TCAPP does not endorse these doctors.



California (Northern)

Thomas Ahern M.D.
Cardiovascular Disease, Clinical Cardiac Electrophysiology
Scripps Clinic Torrey Pines
Familiar with Dysautonomia and POTS, treats age 14 and up
phone: 858-554-5039
Deborah Krakow, MD
Physician and research scientist /International Skeletal Dysplasia Registry
Cedars-Sinai
VISIT WEBSITE
Aaron Banks, MD
Pediatric Cardiologist, Pediatric Heart Center
Familiar with POTS and Dysautonomia
phone: 661-664-0808
Elliot J. Krane, MD
Dept. of Anesthesia & Pain Management
Lucile Packard Children’s Hospital
phone: (650) 723-5728
VISIT WEBSITE
Julie Bergman, PT
Familiar with EDS and RSD
Southern California Aquatic and Land therapy phone: (714) 375-1755
VISIT WEBSITE
Inderpal Randhawa MD
Board certified in adult and pediatrics, and certifications in Clinical Immunology, Allergy and Pulmonary Medicine
phone: (562) 933-8567
Anthony Chang, MD., MBA, MPH
Division Chief of CHOC Children’s Specialists Cardiology
Familiar with POTS and Dysautonomia
phone: (714) 509-3939 fax: (714) 509-3949
Dr. Nicholas Riegels
Kaiser Permanente
Knowledgeable about RSD/CRPS
Oakland. CA, 94611
phone: 510-655-4000
Julie Griffith, M.D.
Pediatric Neurologist
phone: (415) 925-1616
VISIT WEBSITE
Stanford Pediatric Pain Program
Mary L. Johnson Pediatric Ambulatory Care Center
Pediatric Pain Management Clinic, Inpatient and Outpatient
phone: (650) 497-8977 fax: (650) 724-5344
Dennis Hart, M.D.
Pediatric and Adult Pain Management Specialist
1625 Stockton Blvd, Suite 104
Sacramento, California 95816
Familiar with many conditions of the spine, nerves and GI tract.
phone: (916) 454-6667
Neda Zadeh M.D.
Medical geneticist in the Division of Medical Genetics at CHOC Childrens’ Hospital, and the Associate Director of the Molecular Diagnostic Laboratory at Genetics Center.
phone: (714) 288-3500 fax: (714) 288-3510
Thomas Hofstra, MD
Hematology/Oncology
Familiar with EDS and rare bleeding/clotting disorders
Children’s Hospital Los Angeles, phone: 323-361-5507 fax: 323-361-7128

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California (Southern)

Thomas Ahern M.D.
Cardiovascular Disease, Clinical Cardiac Electrophysiology
Scripps Clinic Torrey Pines
Familiar with Dysautonomia and POTS, treats age 14 and up
phone: 858-554-5039
Elliot J. Krane, MD
Dept. of Anesthesia & Pain Management
Lucile Packard Children’s Hospital
phone: (650) 723-5728
VISIT WEBSITE
Aaron Banks, MD
Pediatric Cardiologist, Pediatric Heart Center
Familiar with POTS and Dysautonomia
phone: 661-664-0808
William Loudon, MD
PhD Neurosurgery
Familiar with EDS, occult tethered cord, brain tumors
West Coast Pediatric Neurosurgical Associates
phone: (714) 835-2724 fax: (714) 835-2752
Julie Bergman, PT
Familiar with EDS and RSD
Southern California Aquatic and Land therapy phone: (714) 375-1755
VISIT WEBSITE
Inderpal Randhawa MD
Board certified in adult and pediatrics, and certifications in Clinical Immunology, Allergy and Pulmonary Medicine
phone: (562) 933-8567
Anthony Chang, MD., MBA, MPH
Division Chief of CHOC Children’s Specialists Cardiology
Familiar with POTS and Dysautonomia
phone: (714) 509-3939 fax: (714) 509-3949
Dr. Nicholas Riegels
Kaiser Permanente
Knowledgeable about RSD/CRPS
Oakland. CA, 94611
phone: 510-655-4000
Julie Griffith, M.D.
Pediatric Neurologist
phone: (415) 925-1616
VISIT WEBSITE
Stanford Pediatric Pain Program
Mary L. Johnson Pediatric Ambulatory Care Center
Pediatric Pain Management Clinic, Inpatient and Outpatient
phone: (650) 497-8977 fax: (650) 724-5344
Dennis Hart, M.D.
Pediatric and Adult Pain Management Specialist
1625 Stockton Blvd, Suite 104
Sacramento, California 95816
Familiar with many conditions of the spine, nerves and GI tract.
phone: (916) 454-6667
Neda Zadeh M.D.
Medical geneticist in the Division of Medical Genetics at CHOC Childrens’ Hospital, and the Associate Director of the Molecular Diagnostic Laboratory at Genetics Center.
phone: (714) 288-3500 fax: (714) 288-3510
Thomas Hofstra, MD
Hematology/Oncology
Familiar with EDS and rare bleeding/clotting disorders
Children’s Hospital Los Angeles, phone: 323-361-5507 fax: 323-361-7128

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Colorado

Samuel Brescia, M.D.
Pediatric Cardiologist
Familiar with Dysautonomia and Complex POTS
Denver, Colorado
VISIT WEBSITE
Bob Holtby, PT
Physical Therapist
1831 Austin Bluffs Parkway; Suite 100
Colorado Springs, CO 80918
Phone: (719)599-8550 Fax: (719)218-9200
VISIT WEBSITE
Dr. DeZoten
GI Specialist
Children’s Hospital of Denver
phone: 720-777-6669
Dr. Michaele Posey
Certified Functional Neurologist
3230 E. Woodman Rd., Suite 110
Colorado Springs, CO 80920
phone: 214-543-4744
Dr. Hollister
Rheumatologist
Children’s Hospital of Denver
phone: 720-777-6132

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Connecticut

Michelle Gallerini
PT: Physical Therapist
Familiar with recognizing and working with RSD/CRPS
VISIT WEBSITE

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Delaware

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Florida

Steven Iskowitz, M.D.
Pediatric Cardiology
Familiar with POTS and Dysautonomia
(954) 972-1600
Roman Yusupov, MD
Pediatric Geneticist
Familiar with EDS

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Illinois

Dr. Rose Batanjski
Chiropractor
Warren, IL
(586) 576-0701
Dr. Bradley Tinkle
Geneticist
Park Ridge, IL
(847) 723-7705

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Indiana

Dr. Laurence Walsh
IUHP Medical & Molecular Genetics
975 west Walnut Street IB-130 Indianapolis IN 46202
Fax: 317-274-2387, Phone: 317-948-7450
Katelyn Hodge (Genetic Counselor) phone: 317-274-2388
Dr. James Tolley
Riley Hospital, Pediatric Pain Clinic
705 Riley Hospital Drive, Indianapolis, IN 46202
phone: (317) 944-5000
Dr. Heidi Collins
Physiatrist
South Bend, Indiana
phone: 360-647-8358
Dr Michael Yergler
Geneticist
South Bend, Indiana
phone: (574) 247-9441

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Maine

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Maryland

Dr. Clair Francomano, MD
Adult Genetics, Greater Baltimore Medical Center
Familiar with connective tissue disorders
phone: 443-849-3131 fax: 443-849-2919
Dr. Maria Arini, PT, DPT
Manual therapy, MFR, cold laser therapy, dry needling, CRPS, EDS
Bethesda Physiocare
4405 East West Highway Ste 403
Bethesda MD 20814
phone: 301-656-5613
Dr. Fraser Henderson, MD
Neurosurgery, Board Certified
Familiar with chiari and occult tethered cord
phone: 301-654-9390

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Massachusetts

EDS Massachusetts/New England Support Group Recommendations of Doctors/Medical
Contacts: Last updated: 9/28/2014
Jodi Hoffman, M.D.
Pediatric and Adult Connective Tissue Geneticist
Familiar with Connective Tissue Disorders.
VISIT WEBSITE
Sanjay Bansal, M.D.
Pediatric Endocrinologist
Familiar with secondary Vitamin D deficiency, thyroid disorders that may accompany some chronic pain conditions.
WEBSITE
Steven Hwang, M.D.
Pediatric and Adult Neurosurgeon
Familiar with neurosurgical complications that can accompany Ehlers-Danlos Syndrome such as occult tethered cord, tethered cord, cranial cervical instability and chiari malformation.
VISIT WEBSITE
Richard Barnum, M.D.
Pediatric Private Psychiatrist
Extremely versed in the effect of chronic pain conditions on the pediatric patient, the families, and the complexities encountered through the medical system.
(617) 469-3911
Alisa Niksch, M.D.
Pediatric Cardiologist
Extremely versed in dysautonomia, POTS, and other types of syncope that accompany mitochondrial dysfunction, EDS, or RSD/CRPS.
VISIT WEBSITE
Jaime Belkind-Gerson, M.D.
Pediatric Gastroenterologist
VISIT WEBSITE
Joan Stoler, M.D.
Geneticist for Connective Tissue Disorders
VISIT WEBSITE
Stuart Braun, M.D.
Pediatric Orthopedic Surgeon
Familiar with joint instability and conservative measures to stabilize them.
VISIT WEBSITE
Mitchell Strominger, M.D.
Pediatric and Adult Neuroopthalmologist
Familiar with Ehlers-Danlos and Mitochondrial Disorders
VISIT WEBSITE
Kipp Dye, PT
Physical Therapist
Familiar with recognizing and working with RSD/CRPS
VISIT WEBSITE
Lynn Wachs, M.D.
Pediatrician
Familiar with helping to manage as a pediatrician chronic pain cases.
phone: (781) 487-4340
Alexander Flores, M.D.
Pediatric Gastroenterologist
Familiar with motility disorders such as gastroparesis, abdominal pain that accompany many pediatric pain conditions.
VISIT WEBSITE
Harry Webster, M.D.
Pediatric Physiatrist
Familiar with and able to work with gait abnormalities encountered in Ehlers-Danlos Patients and RSD/CRPS.
VISIT WEBSITE

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Michigan

Pierre Atallah, MD
Cardiology
Rochester, MI
phone: (248) 551-3000
Jagmohan Sharma, MD
Physiatrist (pain management)
Clinton Township, MI
phone: 586-228-2882
Dr. Basch
Pain Management Specialist
Grand Rapids, MI
phone: 616-285-1377
Richard Stone, MD
Dermatology
Sterling Heights, MI
phone: 586-685-3285
Violette Henein, MD
Rheumatology
Clinton Township, MI
hone: (586) 859-0632
Dr. David Vallance
Rheumatology
Ann Arbor, MI
phone: (734) 623-0100
Cesar Hidalgo, MD
Neurology
Rochester Hills; MI
phone: (248) 852-1777

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Minnesota

Dr. Anne K. Brutlag
Physical Medicine and Rehabilitation Services
Park Nicollet Clinic
3800 Park Nicolle Blvd
Minneapolis, MN 55416
phone: 952-993-3800 fax: 952-993-11392
VISIT WEBSITE

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Missouri

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Nebraska

Dr. Eric Rush
Genetic Medicine, Munroe-Meyer Institute
985450 Nebraska Medical Center
Omaha, Nebraska 68198-5450
Phone: (402) 559-3446

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New Hampshire

Brian D. Kossak, MD
Pediatric Neurologist
VISIT WEBSITE
Bruce Meyers, MD
Physiatrist
VISIT WEBSITE
George P. Lantz, DO
Pain Management Doctor
VISIT WEBSITE
John H. Yost, MD
Pediatric Rheumatologist
VISIT WEBSITE

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New York (Upstate)

Dr. Svetlana Blitshteyn
Neurologist Specializing in Dysautonomia
VISIT WEBSITE
Dr. Yellamaraju Kumarl
Internal Medicine, Alden Medical Group
Familiar with EDS
phone: 716-218-3887
Erik Canavan, PT
Carey & Daley Liverpool, NY
VISIT WEBSITE
Dr. Wayne Leavitt
Pediatrician
Familiar with EDS
phone: 315-487-1541
Dr. David Kanter
Physical Medicine and Rehabilitation
Familiar with EDS
Syracuse, NY
phone: 315-464-5820
Julian M. Stewart, MD, PhD
Professor of Pediatrics, Physiology and Medicine; Director of the Center for Hypotension
New York Medical College; Valhalla, NY
VISIT WEBSITE

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North Carolina

Herbert Fuchs, MD, PhD
Division Chief, Pediatric Neurosurgery, Duke Medicine
Familiar with hydrocephalus and Chiari malformations
VISIT WEBSITE

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Ohio

Dr. Sumit Parikh
Pediatric Neurologist interested in Neurodegenerative Disorders and Metabolic Disorders
Cleveland Clinic, Ohio
phone: 216-444-5559
VISIT WEBSITE
Dr. Anna Mitchell
Geneticist
University Hospitals of Cleveland
phone: (216) 844-3936

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Rhode Island

Pradeep Chopra, M.D.
Pain Management Specialist
Familiar with EDS/RSD/CRPS and other Chronic Pain Conditions. Primarily serves adults but will see children.
VISIT WEBSITE
Kevin Muldowney, PT
Physical Therapist
Very familiar with EDS and manual physical therapy for the EDS patient young and old.
VISIT WEBSITE
Michael Healey, PT
Physical Therapist
Specializes in craniosacral therapy, Very Familiar with EDS and RSD/CRPS and other spinal issues.
VISIT WEBSITE

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South Carolina

Dr. Timothy Crunk, PT, DPT, MS, OCS, CFMT, FAAOMPT
Physical Therapist, Crunk Physical Therapy, Greenville
Familiar with recognizing and working with pediatric pain conditions.
VISIT WEBSITE
Jonathan Markowitz, MD
Pediatric Gastroenterology, Greenville Hospital System
VISIT WEBSITE
Addie Hunnicutt,MD
Pediatric Neurology, Greenville Hospital System
Familiar with chiari
VISIT WEBSITE

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Texas

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Virginia

John Birknes, MD
Pediatric Neurosurgeon
Familiar with EDS
Children’s Hospital of the King’s Daughters, Norfolk
phone:(757) 668-7990
Joseph Tregaskes, DMD, MS, FACP
Familiar with EDS and TMJ
Richmond. phone: 804-282-0510
Jean E. Teasley, M.D.
Pediatric Neurologist
Familiar with Dysautonomia, POTS and Mitocondrial Disorders
phone: 804-828-9720
Gary W. Tye, M.D.
Pediatric Neurosugeon
Harold F. Young Neurosurgical Center, Richmond
phone: (804) 828-9165 fax: (804) 828-0374

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Wisconsin

Dr. Patrick Cummings
Orthopedic Specialist, Aspen Orthopedics
Familiar with surgical repair of Ehlers-Danlos Ligamentous Injuries in both kids and adults
VISIT WEBSITE
John Routes MD
Children’s Hospital of Wisconsin, Milwaukee
Experienced in treating PIDD
phone: 414-266-6840
Mary Hintermeyer, RN, MSN, CPNP
Children’s Hospital of Wisconsin, Wauwatosa
Experienced in treating PIDD
phone: 414-266-6293
James Verbsky MD, PhD
Children’s Hospital Of Wisconsin, Wauwatosa
Experienced in treating PIDD
phone: 414-266-6840

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TCAPP does not endorse these doctors, their names are provided by at least one client suffering from a pediatric pain condition that has had a positive experience; this does not mean that eveyone’s experience with that particular doctor has been positive. Keep in mind, choosing doctors is much like trying on shoes… each perfect fit may be different for each individual.

We rely on recommendations from patients, if you have had a positive experience with a physician and feel like they should be on this list, please submit the doctor’s name, specialty, internet link or office telephone number and what they have helped you with.