Newly Diagnosed

A new diagnosis may require assembling a trusted medical team for your child.

If your child has pain, you want to find relief. Chronic pain, migraines or Complex Regional Pain Syndrome can require the support of a specialist. If your child is very flexible and Ehlers Danlos Syndrome or a connective tissue disorder is suspected, it is advisable to consult with a geneticist. Psychological support or counseling is another important strategy that helps children cope and live better with chronic illness. Other specialists that may need to be considered for your care team include:

  • Pain Specialist
  • Cardiology
  • Orthopedic
  • Neurologist
  • Neurosurgeon
  • Rheumatologist
  • Allergist/Immunologist
  • Physical Therapist
  • Psychiatrist

Ehlers Danlos Diagnostic Criteria For Pediatric Joint Hypermobility