Videos & Webinars

TCAPP Think Tank

TCAPP’s Pediatric Think Tank annually brings together esteemed pediatric and adult medical experts from across the country to share ideas and strategize how to offer better treatment.

These Think Tanks get everyone together in one room for the discovery of common ground. Dr Chopra, a member of the TCAPP Medical Advisory Board states “We need to educate each other from our different perspectives and training so we can find our what works and what doesn’t, what we know and what we need to know.”

Our 2014 Think Tank would not have happened without the generous support of Genelex. Pharmacogenetic testing can be very helpful when determining treatment paths for children in pediatric pain. Learn more about pharmacogenetic testing and how it can and has impacted patients by viewing videos by Brain Hocum and Dr. Pocinki. TCAPP thanks you Genelex.


TCAPP 2014 Think Tank Videos

Title:
Overview of Pharmacogenetic Testing and Utility

Author: Brian Hocum, PharmD

Title:
Pharmacogenetics Case Studies

Author: Alan G. Pocinki, MD

Title:
Unexplained Pain? Multiple Systemic Complaints? Think Ehlers-Danlos Syndrome

Author: Clair A. Francomano, M.D.
Harvey Institute for Human Genetics
Baltimore Maryland

Presented By: Jean Teasley, M.D.
Director of Pediatric Palliative Care
Associate Professor of Pediatric Neurology
VCU Medical Center

Read Dr. Francomano’s Bio

This lecture discusses Ehlers Danlos, the various types, and how many of the types overlap symptomatically and an overview of its multisystem issues that can create pain in pediatric patients anywhere from joint pain to neuropathy to GI pain to chest pain, etc.

Title:
Postural Orthostatic Tachycardia Syndrome: Diagnosis and Management

Author: Alisa L. Niksch, MD
Pediatric Cardiologist at Tufts Floating Hospital for Children, Boston, MA

Read Dr. Niksch’s Bio

This lecture will go over what POTS is (Postural Orthostatic Tachycardia Syndrome) and how pediatric patients may present with heightened pain, anxiety type symptoms, dizziness, and/or, fatigue. It will then let pediatricians, pediatric specialists know how they can begin to see if POTS is possible by simple orthostatic pressures and heart rate measurements and what the next steps in diagnosing and treatment may be.

Title:
Chronic Fatigue Syndrome and its Related Disorders

Author: Peter Rowe, MD
Pediatric Internal Medicine Specialist at Johns Hopkins Hospital

As a Chronic Fatigue Specialist, this topic will focus on pain and chronic fatigue and multi-faceted disorders that are likely causing it from sleep disorders, to connective tissue disorders, to autoimmune conditions.

Title:
Nephrology Issues with Connective Tissue Disorders and Mitochondrial Disorders

Author: Timothy Bunchman, M.D.
Professor & Director of Pediatric Nephrology at VCU Medical Center

This lecture discusses Complex Pain Conditions that are due to Connective Tissue Disorders or Mitochondrial Disorders can often affect the electrolyte balance of the patient, the dehydration, etc. This lecture will go over how that can be monitored, treated, and watched from a nephrology perspective.

Title:
Dealing with Pain in EDS and Neuropathic Pain Co-Morbidities

Author: Pradeep Chopra, M.D.
Assistant Clinical Professor at Brown Medical School and Director of Pain Management Center of Rhode Island

Read Dr. Chopra’s Bio

Title:
Neurosurgical Options for Pediatric Complex Pain Conditions Involving Ehlers Danlos Syndrome

Author: Fraser Cummings Henderson, Sr. M.D.
The Metropolitan Neurosurgery Group

Read Dr. Henderson’s Bio

This lecture will go over the basics of pediatric pain that presents as incontinence, lower back pain, numbness and tingling of limbs, arms, dizziness, and headaches. It will then describe how to quickly assess for hypermobility and if present, to consider neurosurgical conditions such as Occult Tethered Cord (OTC), Chiari, CCI (Cranial Cervical Instability), and Pseudotumor Cerebri.

Title:
The Consensus Statement CSF Foundation Multi-Disciplinary Colloquium for Cranio – Cervical Hypermobility

Author: Fraser Cummings Henderson, Sr. M.D.
The Metropolitan Neurosurgery Group

Read Dr. Henderson’s Bio

Title:
Neuroradiology Techniques Used to Access Neurosurgical/Neurovascular Abnormalities in EDS

Author: Myles Koby, MD

Title:
Neuropathy and Neuropathic Pain in Patients with EDS

Author: Jean Teasley, M.D.
Pediatric Neurologist at VCU Medical Center

Read Dr. Teasley’s Bio

This educational piece will talk about what peripheral neuropathic pain is and how it may present. It will cover co-morbid chronic complex diseases that often present with peripheral neuropathic pain such as RSD/CRPS, EDS, Mitochondrial Disorders or Dysfunction, and/or Autoimmune conditions.

Title:
YouScript Right Drug, Right Dose, Right Now

Author: Brian Hocum, PharmD


TCAPP 2013 Think Tank Videos

Title:
Ehlers-Danlos Syndrome: A Multi-dimensional Disorder

Author: Clair A. Francomano, M.D.
Harvey Institute for Human Genetics Greater Baltimore Medical Center

Read Dr. Francomano’s Bio

This lecture, given by one of the world-renowned geneticists of Ehlers-Danlos, discusses the various types of Ehlers-Danlos Syndrome and the systems that can be affected. These include disorders of the musculoskeletal, dermatological, neurological, cardiovascular, gastrointestinal and immunological systems. It also goes into the secondary pain conditions that can occur due to Ehlers-Danlos Syndrome which include various types and genres of headaches, muscle pain, and neuropathic pain.

Title:
Conversion Disorder & Somatization Disorder

Author: Richard Barnum, M.D.
Private Practice of Psychiatry and Previously Forensic Psychiatrist for the State of Massachusetts.

Read Dr. Barnum’s Bio

This lecture addresses the true definitions of Conversion Disorder and Somatization Disorder in the past DSM and the current DSM and how kids with Ehlers-Danlos are commonly misdiagnosed with these psychiatric disorders. It further explores the actual psychological support needed by patients with Ehlers-Danlos Syndrome and how that help can be impeded with misdiagnosis.

Title:
Pediatric Pain 2013 … Connecting the Dots

Author: Pradeep Chopra, M.D.
Assistant Clinical Professor at Brown Medical School and Director of Pain Management Center of Rhode Island

Read Dr. Chopra’s Bio

This lecture addresses the common pain syndromes seen with Ehlers-Danlos Syndrome, mitochondrial disorders and the overlapping of RSD/CRPS. It discusses the various effects to the body (such as dystonia, muscle spasms, gastrointestinal issues, etc.) and the different medical options out there both off-label and known.

Title:
Neurosurgical Problems with Ehlers-Danlos Syndrome

Author: Fraser Cummings Henderson, Sr. M.D.
The Metropolitan Neurosurgery Group

Read Dr. Henderson’s Bio

This lecture addresses the various mechanical stressors brought on by Ehlers-Danlos Syndrome and possible neurosurgical interventions that may alleviate some of these stressors. It discusses the mechanical abnormalities such as Cranio-vertebral instability, Chiari, Atlanto-axial instability, Vertebral Instability, Occult Tethered Cord, Jugular venous occlusion, and much more. It then goes into the details of possible surgical solutions to the complicated mechanical stressors.

Title:
How Ehlers-Danlos Syndrome Affects Digestion, Nutrition, Bowel Function, and Gut-Related Immune Function

Author: Heidi A. Collins, M.D.
Heidi A. Collins is a Physiatrist with a Special Interest in Ehlers-Danlos Syndrome as both she and her children are affected by it

This lecture addresses the fact that the entire gastrointestinal system is affected by Ehlers-Danlos Syndrome. It discusses how the connective tissue abnormalities can make the gastrointestinal tract sluggish, painful, leaky, and inflamed. How the autonomic dysfunction seen with Ehlers-Danlos can cause motility disorders and how structural abnormalities can affect absorption, trigger the immune system and cause a cascade of events of inflammation and allergies.

Title:
Ehlers Danlos Syndrome and Dysautonomia

Author: Jean Teasley, M.D.
Neurologist and Palliative Care Specialist at Virginia Commonwealth Hospital

Read Dr. Teasley’s Bio

This lecture addresses the dysautonomia conditions seen very commonly with Ehlers-Danlos Syndrome such as gastroparesis, orthostatic intolerance (OI), IBS, headaches, and many more. It also discusses the various treatments for each disorder and why they might help. Finally, the possible link and overlapping signs of dysautonomia and Ehlers-Danlos Syndrome and mitochondrial disorders is discussed.