TCAPP Think Tank
TCAPP’s Pediatric Think Tank annually brings together esteemed pediatric and adult medical experts from across the country to share ideas and strategize how to offer better treatment.
These Think Tanks get everyone together in one room for the discovery of common ground. Dr Chopra, a member of the TCAPP Medical Advisory Board states, “We need to educate each other from our different perspectives and training so we can find our what works and what doesn’t, what we know and what we need to know.”
Our 2014 Think Tank would not have happened without the generous support of Genelex. Pharmacogenetic testing can be very helpful when determining treatment paths for children in pediatric pain. Learn more about pharmacogenetic testing and how it can and has impacted patients by viewing videos by Brain Hocum and Dr. Pocinki. TCAPP thanks you, Genelex!
TCAPP 2014 Think Tank Videos
Title:Overview of Pharmacogenetic Testing and UtilityAuthor: Brian Hocum, PharmD |
Title:Pharmacogenetics Case StudiesAuthor: Alan G. Pocinki, MD |
Title:Unexplained Pain? Multiple Systemic Complaints? Think Ehlers-Danlos SyndromeAuthor: Clair A. Francomano, M.D. Presented By: Jean Teasley, M.D. |
This lecture discusses Ehlers Danlos, the various types, and how many of the types overlap symptomatically and an overview of its multisystem issues that can create pain in pediatric patients anywhere from joint pain to neuropathy to GI pain to chest pain, etc.
Title:Postural Orthostatic Tachycardia Syndrome: Diagnosis and ManagementAuthor: Alisa L. Niksch, MD |
This lecture will go over what POTS is (Postural Orthostatic Tachycardia Syndrome) and how pediatric patients may present with heightened pain, anxiety type symptoms, dizziness, and/or, fatigue. It will then let pediatricians, pediatric specialists know how they can begin to see if POTS is possible by simple orthostatic pressures and heart rate measurements and what the next steps in diagnosing and treatment may be.
Title:Chronic Fatigue Syndrome and its Related DisordersAuthor: Peter Rowe, MD |
As a Chronic Fatigue Specialist, this topic will focus on pain and chronic fatigue and multi-faceted disorders that are likely causing it from sleep disorders, to connective tissue disorders, to autoimmune conditions.
Title:Nephrology Issues with Connective Tissue Disorders and Mitochondrial DisordersAuthor: Timothy Bunchman, M.D. |
This lecture discusses Complex Pain Conditions that are due to Connective Tissue Disorders or Mitochondrial Disorders can often affect the electrolyte balance of the patient, the dehydration, etc. This lecture will go over how that can be monitored, treated, and watched from a nephrology perspective.
Title:Dealing with Pain in EDS and Neuropathic Pain Co-MorbiditiesAuthor: Pradeep Chopra, M.D. |
Title:Neurosurgical Options for Pediatric Complex Pain Conditions Involving Ehlers Danlos SyndromeAuthor: Fraser Cummings Henderson, Sr. M.D. |
This lecture will go over the basics of pediatric pain that presents as incontinence, lower back pain, numbness and tingling of limbs, arms, dizziness, and headaches. It will then describe how to quickly assess for hypermobility and if present, to consider neurosurgical conditions such as Occult Tethered Cord (OTC), Chiari, CCI (Cranial Cervical Instability), and Pseudotumor Cerebri.
Title:The Consensus Statement CSF Foundation Multi-Disciplinary Colloquium for Cranio – Cervical HypermobilityAuthor: Fraser Cummings Henderson, Sr. M.D. |
Title:Neuroradiology Techniques Used to Access Neurosurgical/Neurovascular Abnormalities in EDSAuthor: Myles Koby, MD |
Title:Neuropathy and Neuropathic Pain in Patients with EDSAuthor: Jean Teasley, M.D. |
This educational piece will talk about what peripheral neuropathic pain is and how it may present. It will cover co-morbid chronic complex diseases that often present with peripheral neuropathic pain such as RSD/CRPS, EDS, Mitochondrial Disorders or Dysfunction, and/or Autoimmune conditions.
Title:YouScript Right Drug, Right Dose, Right NowAuthor: Brian Hocum, PharmD |
TCAPP 2013 Think Tank Videos
Title:Ehlers-Danlos Syndrome: A Multi-dimensional DisorderAuthor: Clair A. Francomano, M.D. |
This lecture, given by one of the world-renowned geneticists of Ehlers-Danlos, discusses the various types of Ehlers-Danlos Syndrome and the systems that can be affected. These include disorders of the musculoskeletal, dermatological, neurological, cardiovascular, gastrointestinal and immunological systems. It also goes into the secondary pain conditions that can occur due to Ehlers-Danlos Syndrome which include various types and genres of headaches, muscle pain, and neuropathic pain.
Title:Conversion Disorder & Somatization DisorderAuthor: Richard Barnum, M.D. |
This lecture addresses the true definitions of Conversion Disorder and Somatization Disorder in the past DSM and the current DSM and how kids with Ehlers-Danlos are commonly misdiagnosed with these psychiatric disorders. It further explores the actual psychological support needed by patients with Ehlers-Danlos Syndrome and how that help can be impeded with misdiagnosis.
Title:Pediatric Pain 2013 … Connecting the DotsAuthor: Pradeep Chopra, M.D. |
This lecture addresses the common pain syndromes seen with Ehlers-Danlos Syndrome, mitochondrial disorders and the overlapping of RSD/CRPS. It discusses the various effects to the body (such as dystonia, muscle spasms, gastrointestinal issues, etc.) and the different medical options out there both off-label and known.
Title:Neurosurgical Problems with Ehlers-Danlos SyndromeAuthor: Fraser Cummings Henderson, Sr. M.D. |
This lecture addresses the various mechanical stressors brought on by Ehlers-Danlos Syndrome and possible neurosurgical interventions that may alleviate some of these stressors. It discusses the mechanical abnormalities such as Cranio-vertebral instability, Chiari, Atlanto-axial instability, Vertebral Instability, Occult Tethered Cord, Jugular venous occlusion, and much more. It then goes into the details of possible surgical solutions to the complicated mechanical stressors.
Title:How Ehlers-Danlos Syndrome Affects Digestion, Nutrition, Bowel Function, and Gut-Related Immune FunctionAuthor: Heidi A. Collins, M.D. |
This lecture addresses the fact that the entire gastrointestinal system is affected by Ehlers-Danlos Syndrome. It discusses how the connective tissue abnormalities can make the gastrointestinal tract sluggish, painful, leaky, and inflamed. How the autonomic dysfunction seen with Ehlers-Danlos can cause motility disorders and how structural abnormalities can affect absorption, trigger the immune system and cause a cascade of events of inflammation and allergies.
Title:Ehlers Danlos Syndrome and DysautonomiaAuthor: Jean Teasley, M.D. |
This lecture addresses the dysautonomia conditions seen very commonly with Ehlers-Danlos Syndrome such as gastroparesis, orthostatic intolerance (OI), IBS, headaches, and many more. It also discusses the various treatments for each disorder and why they might help. Finally, the possible link and overlapping signs of dysautonomia and Ehlers-Danlos Syndrome and mitochondrial disorders is discussed.