The following document was agreed upon by physicians who attended the 2014 TCAPP Physician Think Tank on Ehlers Danlos Syndrome (EDS) and Co-Morbid Conditions. This worksheet is only a guide for patients (and their local physicians) who are traveling to see an EDS specialist. This guide is not meant to take the place of, or to override the recommendations of one’s primary care physician. The goals of this guide are to help traveling patients keep as much of their medical care and work-up with their local physicians; aide the patients in lessening their financial costs by doing as much of their medical work-up at home as they are able; and when travel is necessary, help the patient collect as much medical information in advance to make the most out of a consult
with the EDS specialist.

https://tcapp.org/wp-content/uploads/2017/03/TCAPP_EDSWorksheet.pdf