Tag: Munchensen By Proxy
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When Medicine Attacks Motherhood
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By DM Sullivan My phone has been blowing up all week. It happens every May. This year it seems to be a little more intense, but I know the reason – Mother’s Day. I am a rare disease mom and patient advocate. I have spent the last ten years supporting families who live with rare,…
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Why Even Fame Can’t Shield Jameela Jamil from the Ugly Truth About Ehlers Danlos Syndrome
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By DM Sullivan 2019 brought much hope to the long-silent-suffering Ehlers Danlos Community when Lena Dunham, Jameela Jamil, and SIA revealed their EDS diagnoses. It felt like a celebrity endorsement of sorts. EDS suddenly went from “what?” to the “disease du jour” and was all over social media and pop culture news programs like Entertainment…
