An archive library of newsletters, news, blog posts, and other significant items that will help aid the pediatric pain patient and their families.
The newsletter featured Knowing About Conversion Disorder and the Effects of Misdiagnosis, A Parents Perspective: The Top 3 Mistakes and Lessons Learned While Advocating for My Child, A TCAPP Family Assistance Fund Recipient, and a poem by an EDS sufferer.
The May 2013 newsletter featured Welcome to TCAPP. Ehlers Danlos Syndrome, Caring for Your Complex Child and The Challenge of Pain (A Child’s Perspective)
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Parents Talk Blog
By DM Sullivan A recent episode of Greys Anatomy featured a storyline about Ehlers Danlos Syndrome. By getting some of the facts wrong, Grey’s writers actually delivered a more true to life portrayal.
Shannon Marie Curley
5/7/93 – 5/31/15
Sick Chick Blog