Mike Pinkham is a Certified Public Accountant who received his Master of Science in Accounting from Suffold University in 2016. He has experience in tax and assurance and works with numerous non-profits, for-profit enterprises, and individuals. Having seen his cousing battle chronic pain for over a decade, Mike is committed to fulfilling the mission of TCAPP in any way he can. Mike serves as treasurer for TCAPP, where he is responsible for bookkeeping and compliance.

Jodi has been part of TCAPP since day one as a teenager living in chronic pain. Jodi sends cards and Smiles to TCAPP kids, fundraises and organizes TCAPP’s Pediatric Pain Week at The Center for Courageous Kids. Jodi’s been living with chronic pain since the age of 14 and was eventually diagnosed with Ehlers Danlos Syndrome after searching for answers for many years. She is passionate about helping children who live with chronic pain and aiding them to make connections with others who understand what they are going through.

Lexi is a 24 year old who lives with many chronic illnesses. She was diagnosed as a child and now her mission in life is to help other children find happiness despite being chronically ill. Lexi loves to help and support families and kids going through the struggle of living in chronic pain and having chronic illnesses. Lexi is a writer and enjoys spending time with her cat and husband (as well as helping TCAPP).

Lorie is a Mom of two children: Ashley, 33 and Andrew, 28. Ashley was diagnosed with RSD/CRPS at the age of 13 and many years and several doctors later she was diagnosed with Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Mast Cell Activation Disorder and other health conditions. Andrew was diagnosed with Ehlers Danlos syndrome at the age of 20. Lorie was the former Vice President of Rock Out to Knock Out RSD, Inc. and has been volunteering for many years with other non-profits. With over 20 years of experience helping others navigate this complicated medical journey, Lorie looks forward to working with TCAPP and continuing to help our community.

Ashley Goodall has been an advocate for individuals living with chronic pain for two decades in her role as President of Rock Out to Knock Out RSD, Inc. She was diagnosed with RSD as a young teenager and has since been diagnosed with Ehlers Danlos Syndrome, its comorbidities, and other medical conditions. Throughout her journey, Ashley has raised awareness and funds for those living with chronic pain. Her philosophy is centered around the belief that no one should have to face their struggles alone. She has been a consistent supported of TCAPP and is dedicated to furthering its mission.

Donna Sullivan is health writer, film producer, speaker and the proud mom of three kids navigating life with EDS. As a trailblazing
patient advocate, Donna has spent the last decade trying to raise awareness of the unique challenges faced by families dealing with
Ehlers-Danlos Syndrome, complex pain conditions, and rare diseases.
For over a decade, Donna has volunteered as a board member for The Coalition Against Pediatric Pain. She’s also serves on the board for The Connective Tissue Coalition and is the Director of
Patient Advocacy for Pathways To Trust, a non profit that educates healthcare providers and medical students about the unmet needs of marginalized patient populations.
Donna is also a member of the EDS Society AHEAD Coalition and has recently launched the Do No Harm Project, a patient-led effort to help improve safety and access to care for rare disease patients.

Deidre is the mom of three children. One of her children was diagnosed with Ehlers Danlos Syndrome in 2011. She is committed to helping children with chronic pain conditions and their families and is thrilled to be on the Board.

Sidra is a senior at Wellesley College. She interned with the National Disability Rights Network and is planning to attend law school and have a career in disability rights advocacy.