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Merry Chronic Christmas! Finding the Spirit for Kids Living with Pain
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That most wonderful time of the year is upon us. The frantic frenzy of holiday shoppers, and manic mamas digging deep, forgoing sleep with baking, and picture taking, and decorating and finding new and outrageous things to do with that Elf on A Shelf. What I wouldn’t give to be part of that madness. Yet as I…
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PTSD and Chronic Pain
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Dealing with chronic illness and navigating the medical system can be extremely stressful on families. When a child has a condition that is not easily recognized, treatment options are not clear-cut, or required modifications are not well understood, it only adds to the pressure. Sadly, many TCAPP kids have experienced and been diagnosed with post-traumatic…
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Why The Red Band Society Does Not Completely Miss the Mark
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Your body isn’t you. Your soul is you and they can never cut into your soul. Leo, The Red Band Society FOX recently launched it’s new teen medical drama The Red Band Society. My daughter and I watched with great anticipation, because like many TCAPP families, we have spent much of her adolescence in hospitals and…
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Paving the Way! Back to School for Kids in Pain
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When a child is living with pain and chronic health issues, back to school can be a time of mixed emotions and added logistics for parents to navigate. Back To School Means Time To Advocate I woke up this morning, ignored the pit in my stomach and made THAT call. You know, the call to…
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That Space Between Us
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You will always be my baby, my child, my soul – you are part of me. Your challenge is my challenge, your illness is my illness, and your pain is my pain. I would give anything to trade places and take what you must endure each day. I would do anything to make all the…
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Surviving the Rabbit Hole
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If you are reading this blog, chances are your child, or someone you love lives with a chronic pain condition. Your daily life is most likely altered, and possibly has become limited. If you are fortunate, you will have found care with the many knowledgeable and supportive medical professions who understand connective tissue disorders and…
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Would You Like to Guest Blog?
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Welcome to our new blog, Parents Talk! Since there is no manual for how to parent a child in chronic pain, or how to navigate the sometimes seemingly endless abyss of physical and emotional challenges, we have created this space to explore and discuss the unique parenting and family issues that so many of us face.…
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Connecting
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Our 10-year-old daughter who was once a beautiful and passionate dancer now sat in a wheelchair as walking was far too painful.She had lost sensation below her knee, where the excruciating pain was coming from.Her foot had become discolored, swollen and extremely cold. While trying to get a diagnosis and treatment we took her to…
Parents Talk Blog
Would You Like to Guest Blog?
Welcome to our new blog, Parents Talk! Since there is no manual for how to parent a child in chronic pain, or how to navigate the sometimes seemingly endless abyss of physical and emotional challenges, we have created this space to explore and discuss the unique parenting and family issues that so many of us face. We are not experts, just parents like you, who hope that by sharing experiences and discussing strategies we might spark ideas and provide insights on new ways to help our kids.
We invite you to submit ideas for topics or parenting challenges that you would like to explore. We also welcome guest bloggers, so if you have an area of expertise, or topic that you would like to write about, please feel free to contact us at [email protected].
