Tri-City Senior Overcomes Rare Disorder

By Maggie MenderskiStaff Writer Posted Jun. 8, 2014 @ 9:30 pm  BUFFALO — For Kaylee Edwards, the biggest high school test often was just getting out of bed in the morning.After she overcame that obstacle, the senior at Tri-City High School had to worry about making it through first hour and the possibility of fainting on… Continue Reading »

Remember the Mothers of Sick Children

By:  Courtney Schmidt is medical communications editor, Arnold Palmer Hospital for Children, Orlando, FL. She blogs at Illuminate.“Motherhood is the hardest job you’ll ever love.” I’m not sure who first coined that phrase, but its truth becomes clearer to me everyday. And nowhere is that truth more evident than in mothers of children with a serious illness…. Continue Reading »

Jazz Pianist Noah Baerman, Who Has EDS, Puts His Energy Into Prevailing Through The Pain

BY OWEN MCNALLY Special to The Courant May 7, 2014 There have been challenging times earlier in his life when the gifted Connecticut pianist and composer Noah Baerman almost had to give up playing the piano because of the debilitating pain he has suffered from a rare, degenerative disease of the connective tissue called Ehlers-Danlos… Continue Reading »

‘I am NOT a drunk’: Teenage girl has rare fainting condition which means she collapses after 30 minutes of standing

By EMMA INNES PUBLISHED: 04:36 EST, 7 May 2014 | UPDATED: 07:34 EST, 7 May 2014 Paige Bartram, from Leeds, has Postural Tachycardia Syndrome This causes her nervous system to respond abnormally to standing up She says that when she passes out in public people assume she’s drunk On one occasion she was left unconscious in the street for 35 minutes… Continue Reading »

WNC woman says she was unfairly targeted for harassment due to handicap tag

By Nikki Davidson – bio | email ASHEVILLE, NC (FOX Carolina) – A Western North Carolina woman is speaking out after she said she’s been unfairly targeted for harassment due to a handicap. Asheville college student Jenn Kerr said the reason she was singled out has nothing to do with a disability and everything to do with her age.  Kerr… Continue Reading »

Loyalty the reality behind fantasy by 16-year-olds

(Photo: The Enquirer/ Tony Jones) SHARE 185 CONNECTTWEET 4COMMENTEMAILMORE FAIRFIELD TWP. – Elizabeth Schulze and Kylie Powell will sign copies of their new book Saturday at Book Bums in West Chester. It’s notable that the authors are a pair of 16-year-old Fairfield High School sophomores, and that they spent five years writing “Cursed Ones,” a 296-page fantasy/science fiction novel…. Continue Reading »

Getting Your Life Back One Surgery at a Time

By Jeff Leen, Published: March 10 in the Washington Post Mildred Burke had one of the strongest necks in the world. A champion pro wrestler in the 1930s and the first female athlete to earn $1 million, Burke was only 5-2, but her bulging neck measured 14 inches around. To entertain the crowd, she would lie on her back… Continue Reading »

What Pain Feels LIke for Someone With Ehlers-Danlos Syndrome

Cincinnati Children’s Blog By:Kenneth Goldschneider, MD, FAAP on August 8, 2013 You might have seen Hallie’s edition of Tell Me a Story. Her journey with pain as a patient withEhlers-Danlos Syndrome (EDS) is familiar to us now, but several years ago, we had not recognized just how often EDS, a hereditary cause of hypermobility, was a cause of pain…. Continue Reading »