Johnson City Press August 12th, 2014 1:17 pm by STAFF REPORTS NASHVILLE — The UnitedHealthcare Children’s Foundation is seeking grant applications from families in need of financial assistance to help pay for their child’s health care treatments, services or equipment not covered or not fully covered by a commercial health insurance plan. Qualifying families can receive up… Continue Reading »
Would you like your doctors to understand more about your child’s complex chronic disease? Invite them to Pain in Pediatrics with Complex Chronic Disease. This one day class with CME’s will be taught by: Timothy Bunchman, MD Professor & Chief of Nephrology and UroRenal Clinic, Virginia Commonwealth University Children’s Hospital of Richmond. Clair A. Francomano,… Continue Reading »
We hope you enjoy our blog, Parents Talk! Since there is no manual for how to parent a child in chronic pain, or how to navigate the sometimes seemingly endless abyss of physical and emotional challenges, we have created this space to explore and discuss the unique parenting and family issues that so many of… Continue Reading »
Kids living in pain are robbed of so many childhood experiences – including going to an overnight camp. TCAPP is partnering with Camp for Courageous Kids to send kids to a week long camp where our kids can step out of the shadows of their every day lives and step into the spotlight with other children coping… Continue Reading »
Rosemary Wiser, one of our first TCAPP Kids, is hosting a walk and bake sale to raise awareness for RSD/CRPS. For those that don’t know, RSD/CRPS is a condition of the nervous system that causes serve nerve pain among other things. Rosemary has been living with it for years now and not enough people… Continue Reading »
Hello and welcome to our store! We are Robin and Selkie, a mother and daughter artistic team, and we make jewelry, art, and crafts for zebras and spoonies. We are both affected by multiple rare disorders that cause chronic pain. When we aren’t homeschooling, we are working on art projects, crafts and making jewelry. So… Continue Reading »
The EDNF 2014 Annual Learning Conference will be held at the Hilton Americas Hotel in Houston, TX, from July 10-12! For those of you with EDS, this is an excellent conference. To find out more information visit the EDNF website by clicking here.
As part of making an educational video, Dr. Barnum (a member of TCAPP’s MAB and a practicing child and adolescent psychiatrist who works with a number of children and teens with persistent complex medical problems) interviewed a half a dozen children and parents while attending TCAPP’s Think Tank. This article stems from those interviews, and… Continue Reading »
Check out TCAPP’s new website! Our new design makes it easier to find information and several new TCAPP programs have been launched to better connect the community we support. Our State Outreach Program is supported by individuals who have become a part of the TCAPP team as a point of contact for each state. These… Continue Reading »
Please support TCAPP by participating in our on-line auction that ends April 14th. We have some interesting and fun donations. Please check it out and bid if you can. Your money will make the 2nd Medical Think Tank in the Washington, DC area this September a reality. Bid Now!
Everyone knows living with chronic illness, particularly one involving pain, can wear on you, your family, and just beat you down. It’s an ugly reality that many out there are faced with. Those affected end up having two choices in life: Give Up; or Live In Spite of Your Illness and Chronic Pain to the… Continue Reading »
Two of our MAB physicians are mentioned in this article. They are our heroes for giving our kids a chance at a decent quality of life. Hats off to Drs. Henderson and Francomano! When Flexible Becomes Too Flexible By Jeff Leen, Published: March 10 in the Washington Post Mildred Burke had one of the strongest necks in the… Continue Reading »